Harper's Friends

Thanks to social media our founders (Michael and Megan Yockey) have been connecting with other families whose children are currently experiencing developmental delays due to Lamb-Shaffer Syndrome (LSS).  This rare gene disorder is caused by a mutation, deletion or partial deletion in the SOX5 gene located in the 12th chromosome, just like Harper.

To meet the kiddos please click the button below to visit the Lamb-Shaffer Syndrome website page that has been dedicated to those who have been diagnosed so far.  Your contributions to this important research will benefit these children and their families as well as those we have yet to locate!  

If you have found this site in search of information on this condition, please contact us at the email or phone numbers above or follow us on our Facebook page at www.facebook.com/harpersquest or visit www.lambshaffer.org.  

We would love to connect you to this growing community of families just like ours.  You are not alone!